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1.
Health Educ Behav ; 48(1): 9-13, 2021 02.
Article in English | MEDLINE | ID: covidwho-2255035

ABSTRACT

Online misinformation regarding COVID-19 has undermined public health efforts to control the novel coronavirus. To date, public health organizations' efforts to counter COVID-19 misinformation have focused on identifying and correcting false information on social media platforms. Citing extant literature in health communication and psychology, we argue that these fact-checking efforts are a necessary, but insufficient, response to health misinformation. First, research suggests that fact-checking has several important limitations and is rarely successful in fully undoing the effects of misinformation exposure. Second, there are many factors driving misinformation sharing and acceptance in the context of the COVID-19 pandemic-such as emotions, distrust, cognitive biases, racism, and xenophobia-and these factors both make individuals more vulnerable to certain types of misinformation and also make them impervious to future correction attempts. We conclude by outlining several additional measures, beyond fact-checking, that may help further mitigate the effects of misinformation in the current pandemic.


Subject(s)
COVID-19/epidemiology , COVID-19/psychology , Health Communication/standards , Social Media/standards , Communication , Humans , Pandemics , Public Health , SARS-CoV-2 , Trust
2.
J Behav Med ; 2022 Mar 19.
Article in English | MEDLINE | ID: covidwho-2285209

ABSTRACT

Due to cancer survivors' increased vulnerability to complications from COVID-19, addressing vaccine hesitancy and improving vaccine uptake among this population is a public health priority. However, several factors may complicate efforts to increase vaccine confidence in this population, including the underrepresentation of cancer patients in COVID-19 vaccine trials and distinct recommendations for vaccine administration and timing for certain subgroups of survivors. Evidence suggests vaccine communication efforts targeting survivors could benefit from strategies that consider factors such as social norms, risk perceptions, and trust. However, additional behavioral research is needed to help the clinical and public health community better understand, and more effectively respond to, drivers of vaccine hesitancy among survivors and ensure optimal protection against COVID-19 for this at-risk population. Knowledge generated by this research could also have an impact beyond the current COVID-19 pandemic by informing future vaccination efforts and communication with cancer survivors more broadly.

3.
J Appalach Health ; 2(3): 69-73, 2020.
Article in English | MEDLINE | ID: covidwho-1912189

ABSTRACT

Connected cancer care is of increasing importance in light of the COVID-19 pandemic. The Linking & Amplifying User-Centered Networks through Connected Health (L.A.U.N.C.H.) Collaborative in Appalachian Kentucky has pioneered a new roadmap for equipping communities with the transformative power of broadband to innovate around the future of cancer care and to better scale their ideas. The roadmap involves reaching across disciplines, including public health, anthropology, telecommunications, and user-centered design. The goal is to leverage connectivity and cancer communication research and practice to make a real difference for patients and families.

4.
J Med Internet Res ; 24(4): e29492, 2022 04 12.
Article in English | MEDLINE | ID: covidwho-1883817

ABSTRACT

BACKGROUND: Recent shifts to telemedicine and remote patient monitoring demonstrate the potential for new technology to transform health systems; yet, methods to design for inclusion and resilience are lacking. OBJECTIVE: The aim of this study is to design and implement a participatory framework to produce effective health care solutions through co-design with diverse stakeholders. METHODS: We developed a design framework to cocreate solutions to locally prioritized health and communication problems focused on cancer care. The framework is premised on the framing and discovery of problems through community engagement and lead-user innovation with the hypothesis that diversity and inclusion in the co-design process generate more innovative and resilient solutions. Discovery, design, and development were implemented through structured phases with design studios at various locations in urban and rural Kentucky, including Appalachia, each building from prior work. In the final design studio, working prototypes were developed and tested. Outputs were assessed using the System Usability Scale as well as semistructured user feedback. RESULTS: We co-designed, developed, and tested a mobile app (myPath) and service model for distress surveillance and cancer care coordination following the LAUNCH (Linking and Amplifying User-Centered Networks through Connected Health) framework. The problem of awareness, navigation, and communication through cancer care was selected by the community after framing areas for opportunity based on significant geographic disparities in cancer and health burden resource and broadband access. The codeveloped digital myPath app showed the highest perceived combined usability (mean 81.9, SD 15.2) compared with the current gold standard of distress management for patients with cancer, the paper-based National Comprehensive Cancer Network Distress Thermometer (mean 74.2, SD 15.8). Testing of the System Usability Scale subscales showed that the myPath app had significantly better usability than the paper Distress Thermometer (t63=2.611; P=.01), whereas learnability did not differ between the instruments (t63=-0.311; P=.76). Notable differences by patient and provider scoring and feedback were found. CONCLUSIONS: Participatory problem definition and community-based co-design, design-with methods, may produce more acceptable and effective solutions than traditional design-for approaches.


Subject(s)
Mobile Applications , Neoplasms , Telemedicine , Delivery of Health Care , Humans , Kentucky , Neoplasms/therapy , Rural Population
5.
Health Education & Behavior ; 48(1):9-13, 2021.
Article in English | APA PsycInfo | ID: covidwho-1738077

ABSTRACT

Online misinformation regarding COVID-19 has undermined public health efforts to control the novel coronavirus. To date, public health organizations' efforts to counter COVID-19 misinformation have focused on identifying and correcting false information on social media platforms. Citing extant literature in health communication and psychology, we argue that these fact-checking efforts are a necessary, but insufficient, response to health misinformation. First, research suggests that fact-checking has several important limitations and is rarely successful in fully undoing the effects of misinformation exposure. Second, there are many factors driving misinformation sharing and acceptance in the context of the COVID-19 pandemic-such as emotions, distrust, cognitive biases, racism, and xenophobia-and these factors both make individuals more vulnerable to certain types of misinformation and also make them impervious to future correction attempts. We conclude by outlining several additional measures, beyond fact-checking, that may help further mitigate the effects of misinformation in the current pandemic. (PsycInfo Database Record (c) 2022 APA, all rights reserved)

6.
J Natl Cancer Inst ; 114(2): 179-186, 2022 Feb 07.
Article in English | MEDLINE | ID: covidwho-1303190

ABSTRACT

It is estimated that behaviors such as poor diet, alcohol consumption, tobacco use, sedentary behavior, and excessive ultraviolet exposure account for nearly one-half of all cancer morbidity and mortality. Accordingly, the behavioral, social, and communication sciences have been important contributors to cancer prevention and control research, with methodological advances and implementation science helping to produce optimally effective interventions. To sustain these contributions, it is vital to adapt to the contemporary context. Efforts must consider ancillary effects of the 2019 coronavirus disease pandemic, profound changes in the information environment and public understanding of and trust in science, renewed attention to structural racism and social determinants of health, and the rapidly increasing population of cancer survivors. Within this context, it is essential to accelerate reductions in tobacco use across all population subgroups; consider new models of energy balance (diet, physical activity, sedentary behavior); increase awareness of alcohol as a risk factor for cancer; and identify better communication practices in the context of cancer-related decisions such as screening and genetic testing. Successful integration of behavioral research and cancer prevention depends on working globally and seamlessly across disciplines, taking a multilevel approach where possible. Methodological and analytic approaches should be emphasized in research training programs and should use new and underused data sources and technologies. As the leadership core of the National Cancer Institute's Behavioral Research Program, we reflect on these challenges and opportunities and consider implications for the next phase of behavioral research in cancer prevention and control.


Subject(s)
Behavioral Research , Neoplasms , Alcohol Drinking/adverse effects , Alcohol Drinking/epidemiology , Delivery of Health Care , Diet , Exercise , Humans , Neoplasms/epidemiology , Neoplasms/prevention & control
8.
Health Commun ; 36(1): 89-97, 2021 Jan.
Article in English | MEDLINE | ID: covidwho-939493

ABSTRACT

Seeking cancer information is recognized as an important, life-saving behavior under normal circumstances. However, given the significant impact of COVID-19 on society, the healthcare system, and individuals and their families, it is important to understand how the pandemic has affected cancer information needs in a crisis context and, in turn, how public health agencies have responded to meeting the information needs of various audiences. Using data from the National Cancer Institute's Cancer Information Service (CIS) - a long-standing, multi-channel resource for trusted cancer information in English and Spanish - this descriptive analysis explored differences in cancer information-seeking among cancer survivors, caregivers, tobacco users, and members of the general public during the onset and continuation of the COVID-19 pandemic (February - September 2020), specifically comparing interactions that involved a discussion of COVID-19 to those that did not. During the study period, COVID-19 discussions were more likely to involve survivors or caregivers compared to tobacco users and the general public. Specific patterns emerged across the four user types and their respective discussions of COVID-19 related to language of service, point of CIS access, stage on the cancer continuum, subject of interaction, cancer site discussed, and referrals provided by the CIS. These results provide insights that may help public health agencies deliver, prioritize, and tailor their messaging and response to specific audiences based on heightened health information needs during a crisis.


Subject(s)
COVID-19/epidemiology , Consumer Health Information/statistics & numerical data , Information Seeking Behavior , National Cancer Institute (U.S.)/statistics & numerical data , Neoplasms/epidemiology , Cancer Survivors/statistics & numerical data , Caregivers/statistics & numerical data , Health Knowledge, Attitudes, Practice , Humans , Language , Neoplasm Staging , Pandemics , Referral and Consultation/statistics & numerical data , SARS-CoV-2 , Smokers/statistics & numerical data , United States/epidemiology
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